Primary Care: Carers voices – what it means to be a carer – video

Carers voices – what it means to be a carer

Please watch the following short video

Credit: Carers Trust (2:51)

Before he was ill, our life was wonderful as long as we were together. Michael has cancer and has acquired brain injuries. He ended up on life support for a month and wasn’t the same again.

I lost my husband and it was difficult to take the change. I’m expected to carry on and look after him.

My daughters are the most important things to me. Simran is eight and has special needs. We’re constantly at different hospitals and her day-to-day activities have to be supported no matter what.

Emotionally, it’s crazy and I had to learn ways of dealing with the emotional strain. Socially, I’m completely isolated and physically I’m exhausted.

I had to learn so much as I’m the financer, nurse, and secretary all rolled into one, which is totally overwhelming.

I’ve been suicidal before. Giving up my career as a project manager in the office was a big change. It became clear Simran was going to need more support.

To make ends meet, I had to be creative. I can phone Carer’s Trust for help and the sitting service gives me me time.

Carers Trust has provided information and specialist advice which has made a tremendous difference. They also recently had a well-being appointment, which was so helpful.

As carers, we take our own health for granted, but Carers Trust is looking out for us and prolonging our ability to look after the people we love.

I’ve made Michael’s life as good as I possibly can with the support I’ve received. It’s not all doom and gloom and I’m grateful for the support I’ve received. I’m looking forward to the future.